American Academy of Pediatrics Newborn Hearing Screening
AAP is an organization made up of pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. The AAP site provides information related to newborn hearing screening, practice guidelines, etc. AAP also provides a "Just in Time" Early Hearing Detection and Intervention Educational Kit for free. It is a handy practice resource that helps provide hearing health care for the infant and children.
Alexander Graham Bell Association for the Deaf and Hard of Hearing
A nonprofit, membership-based information center on hearing loss. Their focus is specifically on children with hearing loss, providing ongoing support and advocacy for parents, professionals, and other interested parties. Information available to parents includes publications, funding sources, pamphlets, conferences, and scholarship program information. Also: AG Bell Montessori School.
American Academy of Audiology
A professional membership organization dedicated to providing high quality hearing care to the public. Provides consumer information and locates certified audiologists in a specified area. Web site contains "Ask the Audiologist," which adds to parental and public understanding of audiology.
American Society for Deaf Children
A nonprofit organization that educates, empowers, and supports parents and families of children who are deaf or hard-of-hearing. Helps families find meaningful communication options, particularly through the use of sign language, in their home, school, and community. A parent listserv and magazine are also available.
American Speech-Language-Hearing Association
National professional, scientific, and credentialing association for more than 93,000 audiologists, speech-language pathologists, and speech, language, and hearing scientists. Provides brochures, fact sheets, and information packets to the general public at no cost. A computerized referral database of audiology and speech-language pathology programs is available to meet individual consumer needs.
Better Hearing Institute
Non-profit organization. Provides information concerning hearing loss, hearing aids, and where to go for help.
Boys Town National Research Hospital
A nonprofit hospital that is internationally recognized for research and treatment of childhood deafness and communication disorders. Programs include the Center for Audiology and Vestibular Services; the Center for Childhood Deafness, Language, and learning; and the Center for Medical/Surgical Services. Produces videotapes designed to help families learn to sign and to read more effectively with young children who are deaf.
Callier Center for Communication Disorders
A nonprofit educational, clinical, and research center for individuals with communication disorders of all types. Clinical services specific to hearing loss include complete audiological testing, amplification services, aural rehabilitation classes, and cochlear implant evaluation and habilitation. Summer Listening camp offered one week each summer. Educational programs include specialized services for children with hearing loss, ages 2-5, within an early childhood preschool.
Centers for Disease Control and Prevention - Early Hearing Detection and Prevention Program
The CDC EHDI program is a program under the Federal Centers for Disease Control (CDC) in Atlanta, Georgia. To ensure that all newborns have the opportunity to communicate from birth, the CDC's EHDI program is a part of continuing national efforts to promote:
• The early detection of hearing loss
• The tracking of infants/children who are deaf or hard of hearing
• The initiation of effective intervention systems
Central Institute for the Deaf
CID is a private, nonprofit institute. It has research laboratories in which scientists study the normal aspects as well as disorders in hearing, language, and speech. It has a school for children who have hearing loss and professional education programs in audiology, education of persons with hearing loss, and communication sciences. CID also has speech, language, and hearing clinics.
Deaf Linx
Deaf Linx is your resource for information on deafness, deaf culture, American Sign Language (ASL) and all other related topics.
Deafness Research Foundation
A privately funded research foundation committed to finding the causes, treatment, and prevention of all types of hearing loss. Organizes a national campaign aimed at public outreach, professional education, and government relations. Provides parents with a Web site detailing current research findings.
Described Captioned Media Program
A nonprofit program with a free-loan video collection of approximately 4,000 titles. Provides open-captioned videos, available free of charge to any American with a hearing loss, or to any hearing person involved with hearing loss, such as parents and teachers. Funded by the U.S. Department of Education.
Family Voices
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN. We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Family Leadership in Language and Learning (FL3)
A program funded by the Health Resources and Services Administration to ensure EHDI programs, funded by federal funding in the United States, use research-based concepts known to support families, parents and caregivers of deaf or hard of hearing babies, toddlers and young children identified through newborn hearing screening. The goal is to ensure children reach their optimal language, literacy and social-emotional development.
Gallaudet University Regional Center
Affiliated with Gallaudet University, this Community College provides services to students who are deaf and hard-of-hearing, as well as to parents, educators, and educational interpreters in eleven Midwestern states including Texas. Services provided include workshops and seminars in a variety of areas related to improving the quality of education for students with hearing loss, family and parent education programs, needs assessment, technical assistance, and resource and referral.
Hands & Voices
Hands & Voices is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing. They are non-biased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support.
Holley Family Village
A nonprofit organization of volunteers, doctors, speech-language pathologists, audiologists, and other professionals. Provides services aimed at improving the quality of life and programs for deaf families, hearing families with children who are deaf, parents who are deaf with hearing children, and seniors who are deaf.
John Tracy Clinic
A private, nonprofit organization that provides free worldwide family-centered services to young children with hearing loss. Provides correspondence courses and videotapes for parents of infants and children with hearing loss. Courses are available in English and Spanish.
Joint Committee on Infant Hearing Screening
Members of numerous professional organizations in the hearing healthcare community and Deaf adults joined to create this committee. They produced a position statement ("Principles and Guidelines for Early Hearing Detection and Intervention Programs") that is widely used to determine best practice in pediatric audiology.
Laurent Clerc National Deaf Education Center
The Laurent Clerc National Deaf Education Center at Gallaudet University is a federally funded center with exemplary elementary and secondary education programs for deaf and hard of hearing students (DHH) and is tasked with developing and disseminating innovative curricula, instructional techniques, and products nationwide while providing information, training, and technical assistance for parents and professionals to meet the needs of DHH students births to age 21.
National Association of the Deaf
A nonprofit consumer organization safeguarding the civil rights of persons who are deaf and hard-of-hearing in education, employment, health care, and telecommunications. Provides grassroots advocacy and empowerment, deafness-related information and publications, legal assistance, policy development, public awareness, and youth leadership development.
National Center for Hearing Assessment and Management (NCHAM)
NCHAM serves as the Early Hearing Detection and Intervention, National Technical Resource Center to provide support to EHDI programs in states and territories through training, technical assistance, and access to evidence-based practices.
National Cued Speech Association
A nonprofit association that promotes and supports the use of cued speech for communication, language acquisition, and literacy. Provides information, referral, and support services for persons with language, hearing, speech, and learning needs. Sponsors family camps, workshops, conferences and scholarships. Distributes a catalog, newsletter, and journal on cued speech and hearing loss.
National Institute on Deafness and Other Communication Disorders
A nonprofit organization affiliated with the National Institutes of Health. Conducts research and research training on normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. Provides a newsletter and other materials that educate the public and health professionals about its seven research areas in communication. Web site contains sections for parents that cover topics related to hearing loss.
Oberkotter Foundation
A private family foundation that focuses its efforts on supporting families who have chosen listening and spoken language for their child. The foundation distributes a variety of free educational materials (videos and pamphlets) for parents and professionals.
SKI-HI Institute
A nonprofit institute that develops programs and materials and provides workshops for professionals working with families of infants and young children with sensory impairments.
Starkey Hearing Foundation
A nonprofit domestic program of the Starkey Foundation that increases public awareness about the need for available and affordable assistive technology for people with hearing loss. Provides hearing aids to people with limited financial resources.
TDIforACCESS, Inc
A national advocacy organization that promotes equal access to telecommunications and media for people who are deaf, late-deafened, hard-of-hearing, or deafblind. Provides public education and promotes consumer involvement in policies which support accessibility. Publishes an annual, national directory of TTY numbers.
